Step Up

Step Up: More Funding for Childhood Cancer Research

Step Up Funding for Childhood Cancer

Ask Congress to Step Up with More Funding for Childhood Cancer

Good Morning ACCO Members,

Today is the launch of the first stage of #StepUp social media campaign, which will run for the next 7 days. We will be posting a new blog post each morning of the campaign with that day’s core message and any supporting documents, visuals, and social media suggestions. From there, you can choose if and how to incorporate the message of the day into your organization’s social media.

Please read to the end – A coordinated community effort is underway to storm Congress – on foot and online.  Childhood cancer organizations throughout the country are joining together, and we’re going to send Congress a message, “Step UP: More Funding for Childhood Cancer Research.” Read Blog…

Almost everyone has a story to tell about childhood cancer.  The odds are you or someone you know has been radically altered by this disease.  Because the fact is, one out of every 300 children in the United States will develop some form of cancer before their 20th birthday, and very few will survive it.

Despite remarkable long-term survival rates for many forms of adult cancers, survival rates for childhood cancers remain disturbingly low.  But these miracle cancer treatments are sadly ineffective for childhood cancers, which are more aggressive and stubbornly resistant to surgical or chemical remedies.  And children’s young bodies are more sensitive: the harsh treatments required to kill cancer cells, even when successful, often lead to secondary cancers or long-term disabilities.

The successes modern medicine has seen treating adult cancers could be mirrored in childhood cancers if only we were prepared to give them the same attention.  But we don’t.  Did you know, for example, that in 2012, the National Cancer Institute funded more than $600 million for breast cancer research, but only $200 million for all forms of childhood cancer put together?  Childhood cancer could be survivable.  Childhood cancer could be treatable.  If we want it to be.

 You CAN help!  If you are dedicated to beating childhood cancer in all its forms, join us as we storm Congress and demand that they fix this inequality and give our children a chance to survive this terrible childhood disease.  Childhood cancer organizations throughout the country are joining together, and we’re going to send Congress a message: “Step UP: More Funding for Childhood Cancer Research.

There are many ways for you to help:

  • A little bird will shout from the rooftops that kids deserve to be a higher priority.  Tweet your members of Congress usingSoundOff with a new message each day. Here is an example tweet:  
  • Posting to Twitter on your own? That’s great! Please use the #StepUp hashtag so we can track our success.  Here are some example posts:
  • Email your Representatives (by clicking either of these links: House and Congress) and ask them to increase appropriations for NCI and reauthorize the Carolyn Pryce Walker Act.
  • Change your Facebook and Twitter profile photos to the “StepUp” image
  • Directly ask three friends to share the message with their representatives

Every day we’ll share a different tweet that can be found within the SoundOff Campaign.  Please follow our Facebook and Twitter pages closely so we can send a cohesive message to the Hill each day.

This week, as advocates travel to Washington D.C. for Action Days, and supporters from home make their voices heard loud and clear, we’ll take one step in a long journey towards more federal research funding and better treatments for kids with cancer.

Please be a part of this coordinated community effort.

Sincerely,

The Team at The American Childhood Cancer Organization

The Alliance for Childhood Cancer

5 thoughts on “Step Up

  1. This is awesome. As a childhood cancer survivor myself for 16 years we need more focus on childhood cancer. I received radical chemotherapy and radical head radiation. The radiation was so radical that it killed my hair follicles. However, if they hadnt i font believe i would be alive today. But we do need for Congress to also look at the damaging effects of these radical treatments in terms of insurance paying for prosthetic hair pieces. Insurances will pay for other prosthetics, but most do not cover the cost nor a small amount for prosthetic hair pieces. These can be incredibly expensive. The insurance companies deem them wigs, but this offends me to the core. This is not my choice to wear one. It is socially unacceptable for me to walk around with partial hair on my head. I can’t get any assistance and I tried every revenue. In terms of Alopecia it is deemed otherwise specified and again not covered. Congress needs to be aware that there are childhood cancer survivors that need special prosthetics; and our insurances need to be responsible for covering the cost. If they can pay for reconstructive surgery for breast cancer survivors, they can be held accountable for other cancer related services. I do know that it took a long time and a hard fight for insurances to cover this service. However, being a woman myself, having hair is another important attribute that makes me feel whole and like a woman. I do so applaud you in this great fight for past and future childhood cancer survivors.

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